The little boy was lying on the bed, his big eyes, which should have been clear and innocent, but he didn't look at all.
He was covered in tubes, unable to speak or move, and relied on various instruments to sustain himself.
Authoritative doctors have asserted that this child will not live to be 2 years old!
But he is now more than 2 years old and is tenaciously alive in the "rural ICU" that his parents built for him.
What disease did this unfortunate child suffer from? Are "intensive care units" built in the countryside really useful? Can the child's illness be cured in the end?
In a village in Yueyang City, Hunan Province, there is a couple. The woman's name is Liu Yan and she has been pregnant for more than 9 months.
When I was at home after lunch and preparing to rest, I felt that something was wrong with my stomach.
"Maybe I'm going to give birth!" Liu Yan thought to herself.
She hurriedly called her husband, Huang Jiang, and told him that the child might be born.
The two men hurriedly drove to the hospital, and when they arrived at the hospital for examination, the doctor said that they would have to wait for the birth.
So the couple stayed in the hospital and waited for the baby in the stomach to "signal".
They, like all parents, are very much looking forward to the birth of their child.
Unexpectedly, the birth of a child is the beginning of their ordeal!
Finally, the next afternoon, the body reacted, and Liu Yan was pushed into the delivery room.
However, the child was delayed in being born, Liu Yan was in pain and died, her strength was exhausted, and the baby in her belly showed no sign of coming out, which was an emergency for Huang Jiang and his family.
Natural delivery is obviously not possible, and Huang will be afraid that his wife and children are in danger, so he finds a doctor and asks for a caesarean section.
Finally the child was born, "It's a son!" congratulations! The nurse took the child out and handed it to Huang General.
Huang will carefully bear fruit, looking at his infant son, full of joy and gratitude.
The couple named the child "Huang Zihang", nicknamed Hangbao.
He was innocent and lovely, and his big eyes were full of curiosity about the world.
Hangbao also loves to laugh very much, and everyone calls him "Smiling Baby".
The birth of Hangbao brought great happiness to the family, but this happiness did not last long.
After Hangbao was born, Grandma took care of it busily, and she felt very happy to see her grandson and the old man.
One day, however, Grandma noticed that something wasn't quite right with her grandson.
The child's spirit is getting worse and worse, and his hands and feet are weak, soft, and he will not kick his legs and wave his hands.
At first, Liu Yan and his wife did not care, they thought that the child was too small, had no strength, and it would be better to grow up.
And Hangbao's eyes look very energetic, not like sickness.
Hearing the couple say this, Grandma also felt that she might be suspicious.
Soon hangbao was full moon, and his family took him to the hospital for examination.
Unexpectedly, this investigation actually found out the problem, so that the family would never have a peaceful day.
The test results show that the child is stunted and needs rehabilitation.
Liu Yan and her husband were very panicked, they did not understand, why the child is stunted?
When they were pregnant, they insisted on doing obstetric examinations, and the doctor never said that the child had a problem, why was he sick as soon as he was born? Doctor explains:
Obstetric examination can only detect most of the problems, and some diseases cannot be detected.
The couple followed the doctor's advice and insisted on rehabilitating the child.
I thought that after a month of rehabilitation, Hangbao would get better.
Unexpectedly, the child still can't move, which can upset the couple two.
Even if the newborn child does not do complex movements, instinctively kicking his legs and raising his hands should always be able to do it, right?
But Hangbao did not move. What the hell is going on?
In order to find out the cause of her son's illness and treat it in time, Liu Yan and her husband took the child to various hospitals.
They went to the city hospital first, and without exception showed that "everything is ok."
Then he ran to the provincial hospital and gave the child a genetic screening.
It will take at least a month for the results of the genetic test to come out, so Liu Yan took the child home and continued to do rehabilitation treatment.
A month later, the results of the test came out.
So what disease did XiaoHangbao have?
The results showed that the child had "spinal muscular dystrophy".
The name of this disease Liu Yan and his wife have not heard of,
But from the name of the disease, "muscle atrophy" also explains the reason why Hangbao will not move.
But what kind of disease is this? Is it serious? How can it be cured?
With this question in mind, Liu Yan and her husband took the child to Xiangya Hospital to consult with the doctor.
Doctor explains:
It is a genetic disease that is very rare, with a one in 10,000 incidence in infants and young children, and there are almost no cases of cure. Divided into type I and type II, Hangbaode is the more serious type, with little hope of healing.
And the doctor asserted that the child may not live to be two years old, and the family needs to be mentally prepared.
When Liu Yan and her husband heard the news, they suddenly fell into their chairs.
Hangbao is still so young, he has not seen this world, he will not call his father and mother, will he be taken away by the disease?
They couldn't accept the news and held the child and cried their hearts and lungs.
The doctor told the couple that hangbao's previous rehabilitation treatment could be stopped.
Re-rehabilitation is not helpful for the child's illness, and may cause infection, it is recommended to take the child home for rest.
Liu Yan and her husband healed and returned home with the child in their arms.
One day Hangbao suddenly turned purple in his small face, had difficulty breathing, and began to roll his eyes.
Seeing her son's situation, Liu Yan and her husband were frightened.
Hurriedly prepared the car and rushed to the hospital urgently.
When they arrived at the hospital, the doctor gave the child emergency treatment.
It turned out that Hangbao's throat was blocked by phlegm, which affected breathing.
The doctor took out the phlegm for the child, and finally Hangbao could breathe smoothly.
Afterwards, the doctor explained: "Fortunately, you came early, and the child may not be saved later." ”
Liu Yan and her husband heard the doctor's words, and after a while of fear, they looked at their son with pain.
After Hangbao's condition returned to normal, the doctor advised the couple to take the child home.
As a doctor, he couldn't bear to say to the young couple: "Give up, the child is not saved!" ”
But getting them to stay in the hospital won't really help, and it's a waste of money.
So it can only be euphemistically expressed, and the hospital does not accept it.
They traveled to major hospitals in Hunan Province, and when they had no money to stay in the hospital, they took their children to live in the basement of the hospital.
Liu Yan and her husband, Huang Will, took the child and lived almost all over the basement of Hunan Hospital.
Finally found a hospital in Changde, willing to accept this special small patient of Hangbao.
For such a situation as Xiao Hangbao, it is no longer suitable for living in an ordinary ward.
So as soon as he was admitted to the hospital, he was admitted to the ICU, which is the intensive care unit.
In the ICU, Hangbao's small body is full of various tubes, but he still often has difficulty breathing.
So I had a tracheostomy and used a ventilator to maintain breathing.
This is not the most serious, Hangbao is often stuck in the throat by phlegm, resulting in bruising of the face, so the doctor washed Hangbao's lungs again.
This child, who is not yet 1 year old, has undergone countless surgeries and the pain he has suffered can be imagined.
Moreover, the family's savings have been spent, and they still owe hundreds of thousands of foreign debts.
Many people have advised Liu Yan and her husband: if you give up, your children and adults will be relieved.
But for parents, it hurts to let them give up their children's lives than to cut flesh.
Liu Yan and her husband continued to seek medical treatment everywhere, eager to find a cure.
However, every doctor who treated Hangbao finally shook his head.
Liu Yan and Huang General fell into despair for a while, could they only watch Hangbao die?
At this time, the hospital suddenly came to the news that there is a special drug that has just passed the approval and can treat Hangbao's disease.
This news made Liu Yan and Huang General happy, and the child was finally saved!
However, they were not happy for long, and they fell into sorrow again!
Special drugs that can treat rare diseases are naturally not cheap.
This injectable special drug costs 700,000 yuan with one injection, and must be completed four times in 60 days.
After that, an injection every four months.
Counting down, Liu Yan and his wife need to raise 2.8 million yuan in two months.
In addition to daily medical expenses and machine costs, it will cost 2.1 million yuan for injections every year.
This number is astronomical for Liu Yan and Huang General!
Before the child fell ill, the two were just ordinary salaried workers, her husband was a decorator, and Liu Yan sold products on her mobile phone, with an annual income of only 100,000 yuan a year.
But now the child's medical expenses have reached 5 million, or even more.
To fight or not to fight?
Of course play!
The couple did not hesitate in the slightest! This is the son's only hope of survival.
But where are they going to raise this money?
Liu Yan, who is a micro-business person, has a very sensitive "network sense of smell", and she sees that the live broadcast industry is now very hot.
So I opened an account on the Internet and started to live stream the goods.
Netizens quickly paid attention to this special child and rushed to the live broadcast room to express their support.
Some daily necessities are bought from Liu Yan's live broadcast room.
However, there are also some discordant voices, and some netizens have attacked Liu Yan and his wife for hyping up their children.
In the face of these doubtful voices, the couple can only endure in silence.
With the passage of time, Hangbao has become more and more "red" on the Internet, and kind netizens have also opened up donation channels for them.
In order to cure their grandson's illness, Hangbao's grandparents insisted on going out to work despite their advanced age, and gave their son a little money they earned.
With the help of everyone, Liu Yan and his wife finally got together the medical expenses of Hangbao.
I have to say that this special medicine is working!
After Hangbao finished the injection, the situation gradually improved, and after the condition stabilized, Liu Yan and his wife decided to take the child home.
On the one hand, it is to prevent children from being infected, on the other hand, Hangbao is convenient for family care after returning home, and also saves medical expenses.
After all, there will be more places to use money in the future.
Along with hangbao, there were also machines such as ventilators and suction suction devices.
Liu Yan and her husband set up a room for their children in their hometown, which was full of instruments, especially similar to the intensive care unit of the hospital.
Liu Yan and her husband have to help Hangbao suck sputum every day, intubate gastric tubes to feed liquid food, catheterization and so on.
In order to better take care of their son, Liu Yan and her husband also taught themselves nursing knowledge, and Hangbao's side is inseparable from people, otherwise if you don't pay attention, you may be stuck in phlegm and difficult to breathe.
So the two people took turns to take care of the child, and even installed monitoring in this simple ICU, paying attention to the child's situation at all times, never daring to relax.
Under the careful care of mom and dad, Hangbao's hand can be grasped and can understand what mom and dad say.
Although this is only a small progress, it is already a great comfort for Liu Yan and his wife.
Now Hangbao is 3 years old, breaking the spell of "not living to be 2 years old" that the doctor said.
This unfortunate child is still stubbornly alive.
No matter what happens in the future, Liu Yan and her husband are fully prepared psychologically, and they will always stick to it!
Let us bless this young little life!