This article is from the kidney online app - kidney friend circle, and the author's nickname is "Tree Hole Wheat".
Hello friends, I am an ordinary person who has maintained stable stage 3 kidney failure for 12 years, and at the same time suffered from tumor chemotherapy 4 years ago.
Findings of kidney disease
In 2013, I went to the toilet with a colleague, and was seen by a colleague, and under her reminder, she said that you have foam in your urine, and the foam has not disappeared, and it is not normal to go to the nephrologist for a long time.
I have the advantage of being a good person, I listen to people's advice in everything!
Later, creatinine 139 and uric acid 528 were detected in our local small city hospital, and the doctor said that it was chronic renal insufficiency, and asked me to continue other examinations.
packed I arrived at the big hospital, I was actually a little nervous, I saw so many patients like me through the patient chat, there were old people, there were young people of the same age as me, and there were younger people than me, I felt that I was not fighting alone, and I did not think that I was alone in the fight against the disease.
I remember that after the doctor understood my situation at that time, he prescribed kidney B ultrasound, liver and kidney function, 24-hour urine protein quantification, urine test, blood routine, and a series of reports checked out, creatinine 1.47mg/dl, uric acid 596, protein 1+, kidney B ultrasound showed kidney atrophy!
血肌酐换算：1mg/dl≈88.4umol/L，肌酐1.47mg/dl即为129.9umol/l
At that time, a series of reports came out, and they were sorted into the director's separate small room, and everyone else was arranged for ordinary attending doctors, I panicked, is this according to the severity of the condition? I was given a qualified old doctor of such an age, muttering in my heart, looking confused, and only asking the doctor if I was not serious, right? There are also many patients queuing up at the back, and the doctor only said that you should pay attention to it, and you must come for regular check-ups!
The doctor advised me to eat lightly, have a regular schedule and rest, high uric acid and avoid seafood, meat soup, and prescribed me allopurinol tablets, Bailing capsules, Xinbao kidney tablets, losartan potassium tablets, 3 months of medication, there are 2 large packs of medicine, I think this hospital will not frame me, I don't feel like this, prescribe me so many medicines, do I really need it?
I feel like a drug dealer, in order to hide people's eyes, I only left one outer packaging box for each medicine, all the other medicine boxes were thrown into the trash, and all the drugs were stuffed into the backpack, I didn't let others see it, I am a healthy person, I came to Nanjing to travel! But every time I go, I stop by to play, let's not come in vain! Sometimes I wonder why people who are so healthy have three phases?
Regular medication and regular check-ups
Then go back to take medication regularly, review regularly, never slack off, especially listen to the doctor's words, let when to check, the body has not had any discomfort, my husband said that you are not sick to find a disease, and people who are not sick can find out how much they are sick when they go to the hospital! (It's all when he's farting, I'm in control of my life!) ）
2014.1.15 creatinine 1.61 (i.e. 142umol/l), uric acid 390, the medication was changed to sodium bicarbonate, new kidney protection tablets (diarrhea), Bailing, losartan potassium, benzbromarone (severe urticaria discontinued);
2014.5.5号肌酐1.63（即144umol/l），尿酸605；
2014.11.13 creatinine 1.61 (i.e., 142umol/L), uric acid 481, protein quantification 0.14, drug change new kidney protection tablets, kidney pills, sodium bicarbonate, losartan potassium;
2015.11.11 creatinine 1.64 (i.e. 145umol/l), uric acid 512, parathyroid hormone PTH 104.1, the medication was changed to calcitriol, new kidney protection tablets, losartan potassium, sodium bicarbonate, Jin Shuibao;
2015.4.17 creatinine 1.54 (i.e. 136umol/l), uric acid 553, the medication was changed to losartan potassium, sodium bicarbonate, gold water treasure;
2016.4.18肌酐1.88（即166umol/l），尿酸617，尿蛋白定量0.12；
2017.11.1 Creatinine 1.59 (i.e., 140umol/L), uric acid 504, urine protein quantification 0.41g. At this time, I learned and began to take imported febuxostat, 300 yuan a box, I remember it very clearly!
Later, he started treatment at the local kidney hospital, and the creatinine was kept between 130 and 140 in the local hospital! Uric acid has also dropped to more than 300!
During the whole treatment process, I listened to the doctor, checked on time, took medication, and knew that creatinine is irreversible, so I have always adhered to the concept that maintaining stability is recovery!
Chemotherapy for tumors
In July 2019, due to extreme fatigue at work, emotional anxiety, and unplanned pregnancy biochemistry, I suffered from aggressive malignant molar pregnancy, the medical name is trophoblastic tumor, because of the special reason of kidney disease, the abortion is done without anesthesia, the doctor emphasized that the HCG should be reviewed on time, if it does not fall to normal, then it will have chemotherapy, I am surprised, I will have an abortion and how to have chemotherapy in the later stage, sure enough, the index has risen.
Under the comprehensive advice of doctors and friends, I went to Peking Union Medical College Hospital, the ceiling of treatment of this tumor in China, and at the same time, if there is a kidney disease problem, you can have a tripartite consultation at any time, so don't be afraid if you are sick, you must do your best to find a good hospital and a good doctor to seek a chance for yourself! At that time, the creatinine was 139.8 and the uric acid was 538.
Before going to Beijing, all the problems I may have encountered, the group members told me again, I took the vaccination in advance, I experienced a long treatment, hair loss, severe stomach pain, nausea, vomiting, no sense of taste and I couldn't eat...... Wait, others say that the cure rate of this disease is very high to 98%, I am full of confidence, no matter how painful the process is, as long as I get through it, I comfort my family, relatives, but always hide and cry secretly, after the bad emotions are released, I never immerse myself in it!
I will jump out of myself and look at myself from a third perspective, the body is painful and uncomfortable is temporary, but my heart is free and beautiful, so don't be anxious, the future will definitely recover, and when I look back at this moment in the future, what a brave cancer warrior! No matter how much suffering there is in life, how much merit will be carried! There are two sides to everything!
During the whole treatment process in Beijing, the doctor used chemotherapy drugs again and again, and was cautious, choosing chemotherapy drugs with low toxicity and not being metabolized by the kidneys, and chemotherapy 14 times during the 9 months in Beijing, the doctor said, "14 times, I'm afraid I'm going to poison you, what should I do?" ”
I have changed 3 programs, the value of HCG has repeatedly jumped up and down, the situation at that time would be dead if I didn't take chemotherapy, and if I did chemotherapy, I would be poisonous, and in the end, I relied on red blood cell transfusions and platelets to maintain vital signs, and I couldn't care about creatinine at all, I remember that creatinine was the highest at that time! For fear of drug interference, I stopped all drugs related to the kidneys in the past 9 months and only took febuxostat!
At that time, as long as I couldn't die, I would go to death for chemotherapy, and if I didn't see it well, I would be a general teacher, which could be regarded as a contribution to medicine and organ donation!
The doctor didn't have a rut, saying that the cure rate of this disease was 98%, just bad luck, it belonged to the 2%, the body has reached the limit, and it can't be beaten, and said you go back......
During the rounds, there was a top expert in this area, and I asked him, am I recovering? He looked at my situation and said, you are recovered, there may be people whose indicators are higher than the normal value, go back and recheck once a month!
This doctor is the only one who pressed the recovery confirmation button for me, and I can't thank him for it! Although the index is high, but my belief is that I recovered, every examination is an ultimate test, in order to avoid nervousness, I recheck once every two months, so that in February, I am happy and happy every day, I am healthy, insist on exercising every day, self-strengthening awareness!
In February, the index dropped to half of the standard value, and the miraculous self-healing without medicine has never been normal during the treatment in Beijing!
The current situation
At present, the tumor has recovered, the kidney failure is stable in stage III, the creatinine is 149.6 in August 24, the uric acid is 292, and the urine protein is weakly positive (±), and then it is all yin, which is caused by gluttony recently!
I have compiled a few tips to share in fighting major diseases!
1. When people grow up eating whole grains, they will inevitably get sick, and reconcile with the disease, life is already difficult, please don't blame yourself, think about what the disease wants to remind yourself?
2. Don't be anxious, accept your illness, accept is healing, and do your best to find a good hospital and a good doctor!
3. Sleep well, good sleep can enhance immunity, increase the risk of resisting various diseases, and sufficient sleep has a good auxiliary effect on kidney failure and cancer!
4. Good mood and good attitude are fundamental, learn to change your mind, be positive, optimistic and open-minded, do not care, do not fear the future, live in the present, can help you seek a glimmer of life in a desperate situation! Recently, the well-known kidney journal CJASN published a reminder that if a person is often depressed, annoyed, bored to death, and other depressed conditions, the deterioration of kidney function will be significantly improved! Many cancer patients will collapse and drive themselves into a dead end when they learn that they have cancer!
5. Exercise can secrete dopamine, moderate exercise can make you feel happy and increase immunity!
6. Believe in your body and give yourself positive and positive hints, our bodies are smarter than any electronic device, things can't crush people, but bad negative emotions can suffocate and despair!
7. Change in diet, fried, seafood, hair, meat soup, don't eat, light diet! Maintain a good diet!
Finally, I wish all kidney friends can be healthy and safe!
Kidney line
Thank you very much for sharing with the author. From your language, I deeply feel your open-mindedness, humor, and intelligence.
You can see the good side of life from the two "very bad" experiences of kidney disease and tumor chemotherapy, praise your bravery, encourage your health, how precious it is in this impetuous society! I am deeply moved by you, and we all have to learn from you.